Thursday, August 11, 2011

Updates

No news on the genetic report or the blood test, but we hope we'll at least get blood results back soon.

Eva's still 7.2kg. She seems happy and healthy.

Next Tuesday we're going to University Research Hospital. It's an earlier appointment, so I may cab it with Eva and we're meeting a coworker whose husband works at the hospital. Part of our goal is also to keep people in the loop so that they know what we're up to.

The week after that is the regular pediatrician visit.

We're continuing to learn and read. I've posted several questions to the main B's internet group. It's been helpful in learning about others' experiences. If Eva does have it, her form seems to be milder than many. One of the only ones with a baby who has responded has a kid with the neonatal form. They've had to deal with feeding tubes and continuous vomiting and all manner of challenges. I think part of the reason this freaked me out initially is that there is such a wide range of experiences. Emily also talked to her friend Betsy today, and her husband had a kidney transplant some time back. Obviously, this is not the direction we're hoping to go, but it appears to be the worst case scenario. It's easy to forget that what we are dealing with is much milder than what many people face in daily life. This is all to say that we think Eva is doing fine and that things are becoming a little clearer and a little more normal to us. We're still hoping it's a big mix up and only time will tell.

It was a fun day with Sam today. My language classes got moved around, so I asked one of my teachers if we could pick up Sam and go to the park for an hour of class. Sam had fun looking at turtles in a reservoir and we went to the playground and he also was able to watch people playing baseball, basketball, and soccer. He chatted amicably the whole time and blew a kiss to the teacher when he left. His language skills are really coming along and he seems very happy. Tonight Emily built a "zoo" for him with blocks and he went to bed happy and tired. We're hoping to perhaps take him to his first movie in a theater this weekend. Cars 2 is out, if we can get tickets. We think he's ready, but he may still be a little little.

No comments: